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Resources and Support Services

Resources & Support

It can be challenging to know how to talk about ES, even with the people who know you best.

These resources may help you start conversations about ES with the people who care about you, so that you can get the information and support you need.

Medical Appointment Discussion Guide: Prepare for your next medical appointment with this list of discussion questions, whether you are newly diagnosed with ES, currently undergoing treatment or living post-treatment.

Friends & Family Discussion Guide: Talking with friends, family and loved ones about a diagnosis of ES can be difficult. This discussion guide will equip you with facts about ES to help you start conversations with those who care for you. It also addresses common questions that your loved ones may have about ES, plus ways to encourage them to offer support through your journey.

Soft Tissue Sarcoma Resource Guide: This resource guide contains a list of cancer patient groups (called advocacy organizations) and sarcoma patient groups, plus their contact information. It also includes available support services and resources that may be helpful to you and your loved ones on your ES journey.